Our Mission

Our mission is to improve the lives of those affected by KDM5C genetic variants through advocacy, research, education, & support for individuals and families.

We envision a world where patients and families affected by KDM5C genetic variants are able to achieve their highest attainable health in order to thrive in their communities.

Our Vision

Hope – We believe in a positive outlook for the future. We maintain ambitious goals for improved quality of life for those affected by KDM5C variants. We recognize that our challenges and trauma can coexist with joy and hope.

Innovation – We believe in tapping into the best resources to cultivate new skills, opportunities, therapies, and more. We are committed to utilizing technology to improve our organizational structure and research practices, pushing the limits to bring positive impact to our KDM5C community.

Community – We collaborate with KDM5C patients, families, friends, caregivers, clinicians, researchers and partner organizations to build relationships that maximize our impact. We strive for all people to feel a sense of inclusion and belonging in our community.

Integrity – We conduct our work with honesty and transparency. We demonstrate financial stewardship of the resources entrusted to the KARES Foundation. We put relationships first, prioritizing trust and privacy in all interactions with our community.

Our Core Values

Our Pillars of Work