FAMILY & COMMUNITY ENGAGEMENT
Our private Facebook group is a space for families and caregivers of children with KDM5C disorder as well as researchers and clinicians to connect about questions, needs, fears, concerns, and celebrations of progress.
There is a monthly Parent Support Group that takes place via Google Meet. We also have a virtual Family Education Series happening via Zoom in 2023.
Information on all upcoming events can be found in the private KDM5C Support Group under “Events.”
Our families are the heart of our community and organization!
KARES’ family & community engagement committee is responsible for scheduling regional meet-ups, online meeting opportunities, as well as coordinating family/researcher collaborations, such as the recent KDM5C parent panel on Rare Disease Day.
Do you have a KDM5C family event in mind?
